Projects

Parents Leadership in Building Inclusive Society for Children

ICCO takes a rights based approach, enabling people with disabilities to claim their rights in an environment where their rights can be realized. Since 2012, ICCO provided focused support to more than 20 parents-led and resource NGOs, working for and with children with disabilities (CWD), from all over Kyrgyzstan, to assist their endeavors and unite their efforts in becoming a single effective civic coalition to fight social isolation of their CWD and reduce stigma as well as discrimination.

  • Location
  • Start project
    2016
  • Projectstatus
    Active
  • ID: NL-KVK-56484038-C_005850
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Background

In disability programs, ICCO Cooperation takes a rights based approach and promotes the “social model” of disability, enabling people with disabilities to claim their rights in an environment where their rights can be realized. Through the “PARENTS-LEADERS IN BUILDING AN INCLUSIVE SOCIETY” project, we aim to promote and protect rights of children disabilities and assist networks in their constructive endeavors to foster inclusion of people with disabilities into society.

Since 2012, ICCO has provided focused support to more than 20 parents-led and resource NGOs, working for and with CWD, from all over Kyrgyzstan, to assist their endeavors to unite their efforts and become a single effective civic coalition to fight social isolation of their CWD, neglect of human rights and reduce stigma and discrimination which is widespread in society. As a result of our intervention, the National network entitled "Janyryk" was founded. According to the context analysis of Janyryk network, two of the six most pressing problems, defined by parents, related to themselves: passiveness & segregation, and legal illiteracy. Amongst the root causes of the problem, inhering to different domains, parents indicated the following:
 fragmentation of NGOs with everyone working on the issues as working on an island
 many people do not understand the laws; they do not think they will be able to understand them, and believe even less that they can change or have an impact on the laws. They believe that others will always decide over them, which makes people passive
 parents are not organized and because of this they do not know that there are more parents

Through the project, parents-leaders of "Janyryk" network formed resource groups, affiliated with established information centers in Bishkek and Osh cities, and served regionally as assistants in conducting trainings and other activities. More than 1500 parents of CwD, professionals and NGOs’ visitors were provided with information, materials and knowledge by resource groups’ members and information centers’ staff. “Janyryk” also conducted an extensive participatory context analysis, developed its 5-year Strategic Plan, network structure and coordinating mechanisms, as well as arranged two anti-stigma public campaigns.
Parents Leadership in Building Inclusive Society for Children

Target group

- 1 nation-wide civic coalition (Janyryk network)
- 27 parent-led and recourse NGOs and their staff (20 parents-led and 8 recourse NGOs)
- 56 parents-led and resource NGOs’ formal leaders and their deputies (52 women, 4 men)
- 30 RGs’ members (15 in the north, and 15 in the south)
- 780 duty-bearers at regional level (360 local authorities, 210 health workers and 210 education professionals);
- general public in 7 regions, Bishkek and Osh cities

Sustainability

In order to ensure sustainability of the above stated intended outcomes, ICCO plans to support Janyryk network for 3 more years, by helping it in resource mobilization and fundraising to provide technical and financial support to become strong and competent network, as well as individual grass-root actors in their localities at community and district level to reach, support and engage other parents to emerge changes for CWDs in society and in duty-bearers’ practices through participation and representation.

The latter was identified by Janyryk members as the first priority to start with and a just precondition for any successes. The proposed project perfectly complements another ICCO Disability project on lobbying for state funding for community based services for CWDs, currently run by NGOs with no stable sources of income.

Sustainability will also be ensured through building synergies with HealthProm (UK) ongoing 3-year nation-wide project which aims to prevent institutionalization of CWD by providing psychosocial support to their parents, development of community-based care and rehabilitation as main alternative to institutional care and promoting early intervention for CWD

Goals overview

Overall goal (impact level): To contribute to enhancing respect for human rights and the fundamental freedoms of children with disabilities (CWD) in Kyrgyzstan; and building a more inclusive and equitable society where they can live with dignity
Specific objectives (outcome level)
1. To shape an effective civic coalition to promote the rights of children with disabilities (CWD) by strengthening Janyryk national network
2. To build dialogues and effective cooperation with duty-bearers to raise and address issues of CWD and their families
To combat and reduce societal stereotypes, prejudices and harmful practices relating to CWD
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